Showing posts with label Autism. Show all posts
Showing posts with label Autism. Show all posts

Monday, May 21, 2012

OH one of THOSE days

Today was pretty good over all but  Sweet Potato was a bit of a bitter pill, and in fact has been just icky lately. She finished her school books last week for 5th grade (just not math) and I told her we would start on 6th in about 2 weeks. Now her sister finished the first week of May, and we had sundae's and a movie. Gotta love that new Almond dream frozen Ice cream like stuff So Sweet Potato could participate in that. 

Now for the last week I've been on bed rest,  Saturday I managed to get to the Holt Adoptee picnic and last the whole time, after which I retired to my cushie bed and fell asleep most of the rest of the day. Sunday I managed to make Church, nap and go to a quiet get together with friends where I basically sat and listened to a sweet 20 something. Oh was I ever that young?  My my my... So since I have been on bed rest I figured the girls would pitch in and help. Last week the girls did do some work but left the majority of it to their father.  I thought I had them better trained than that. I'm finding evidence of slacking everywhere today now that I'm not totally comatose. 

Icky Additude examples:
Mom finds all the hard boiled eggs needed for Picnic are barely soft boiled... Mom knows she gave clear instructions. Child even checked with Mom when water was not boiling to makes sure it wasn't really boiling... then went and turned off the water so it wouldn't boil. Because she wanted them to fail. Her heart at that time:  Mom is faking needing to lie down and should do her own work and I don't care or feel like doing her work.  Yup I faked almost blacking out and asked you to finish this terribly hard job of boiling water, my idea of a good time is being asleep all day. 

Oh how bout me trying to encourage friendships. "I know honi not a lot of people call you for play dates why not call some one and invite them over here." 
Instead of calling and making a plan she calls 5 minutes before she wants to play, In which her friend says No sorry I have plans for "Right Now"  or makes a play date without checking in with mom, and has to send her friend home because its just not working out for us at that time because she knew it was a bad time for mom. Seriously she knew! before hand! I got the reason out of her today your gonna love this "Because I'm not a good friend and I don't want to make it work, or act normal."  Well at least she got the whole marching to the tune of her own drummer thing down. 

Today I find that for the last week Sweet Potato has been purposely putting things in the wrong place... this is her idea of fun... The hiding got so bad last year I had to make a rule: I find "it" any "it your directly responsible for" in the wrong place, you loose a token... You don't want to loose all your tokens (3). I gave her grace I found 5 "it's" in the wrong place all at once and only took 1 token because she was down 1 already...

Yesterday while I was taking a walk.. well I wouldn't call it a walk more like a saunter mixed in with a stroll,  around the block trying the whole "side hug" "low body language" "ideal parenting thing" of walking and talking with her while she was in a snit.  It WORKED! The reason she was displaying classic maudlin teenage  behavior is *drum roll please* 
We weren't there for her GRADUATION CEREMONY.  
Aren't we horrible bad terrible parents OH MY! Ya know she home schooled I didn't know we did ceremonies for catching up in the summer because you are behind. Oh wait did I say that out loud... noo just in my blog.  OH do read on... read on... 

You see 3 weeks ago we started attending Irving Bible Church because they have programs for special needs kiddos, and purposefully minister to adoptive parents. So we thought we'd give it a go to see if it would be a fit for us. Maybe our kids would feel more comfortable because they would be one of a crowd of adopted kids...   So Sweet Potato was put in the wrong class the first week. She was properly placed in the 5th grade class the second week... and the third week she GRADUATED FROM HER SUNDAY SCHOOL! Wow woo hoooo amazing *can you hear the one hand clapping alone?*  it's a very zen moment.   

Yup she in a all day chip on her shoulder snit, because we were one of the many parents that didn't attend the 5th grade Sunday school graduation. It was described to me by the Children's Ministry guy as "We pray over them as a big group."   Not one word about parents can come and participate... last week her teacher said "Oh she did great!" not one word about "Hey don't forget to attend the class next week because your kid is graduating." And oh yes only a handful of parents came, arn't we Just awful parents leaving her alone and NOT COMING... Oh the drama of it all. Man it sounds like my 13 year old diary reads, Ahh now you know the real reason I never journaled as a kid. I'd reread my diary and say ugh that's just awful! I wrote that eeew... 

Talking to my Mom today she was giggling over the "drama" saying don't worry she will turn into a fine young lady when she is 16.  WOW mom I'm totally holding you to that!!! 

Don't forget my Reusable Grocery Bag give away is still going on 
face book shares off of my page count too :-) as long as YOU share Xiaoyun's story and I can track back to you and find you so I can ship it, is all that is needed to enter. :-) 

Friday, November 4, 2011

Surmountable: Capable of Being Overcome

Ever have days when you feel stalked by sorrow?  I have been feeling this way lately. I wonder if it's due to the narrowness of my view? Its like I have the Mommy Blinders on and I have no Idea of the world around me. It was a HOT summer where we have been stuck inside. Now the weather has flipped and its cooler than normal and yet I'm still daily praying for rain, Oh where are the October rains??? Oh no wait it's November... So I keep diligently praying for rain. Who's idea was it to build a city in this arid landscape anyway?

Last Sunday I ran into a friend I used to work with on a daily basis. She was sitting outside on a perfect evening. I was feeling lonely and sad. I had totally messed up my schedule and had just completed a task I was supposed to have done hours before that I had forgotten about.  Yet here in Gods perfect timing was my friend.

She looked at me and said "It feels like 2 years since I really talked to you last." Oh how true that was!! She was so right it has been 2 years. My focus has been so turned into family, fixing the issues at home, healing Little M...... I mean Sweet Potato's brain.  Side note here: I have been lovingly rebuked (isn't it awesome to be Truly Lovingly rebuked :-) by a dear friend and as per her suggestion I am officially changing Little M.' moniker to Sweet Potato, but I digress.  So back to the story... Yup its been a good bit more than 2 years to bring about real change in her attitude, hurts, learning disabilities.  I'm still amazed at the flexibly of her brain and it's ability to change, grow and heal. I just love these Nuro typical days..... upon day, upon day, upon day...we are enjoying them so much.  It was wonderful to sit and talk to my friend about dogs, and the weather. To pass the time pleasantly in the company of  one who loved me even when I wasn't available. 

I feel like I have been under water for a long time holding my breath and now I can see the surface all sparkling in the sun. Soon I can burst forth from the water and breath again.  Only just a few more strokes for a clean full fresh breath of air. Ever dive really deep and look up, feel the pressure of the water actually propelling you upwards. Yup that is how I feel now, ever since the last evaluation at Little Giant Steps. Not that we don't have bad moments brought on by her issues. But now I suddenly feel confidant again they are surmountable.

It's been a season at home and it's been worth it. But today I so enjoyed a fuller day at work.  C. took my kids with hers to a petting zoo (woo hooo field trip I didn't have to chaperon!!!) And I got to go use part of my brain that hasn't been used in a good 5-6 years. Once I found where Adobe hid the tool I was looking for in Photoshop. I was able to then train a talented artist in a different way to silhouette... Old school style...cause lets face it... it's the only way I know how and that select tool just wasn't cutting it.  I swear my brain made happy juice as I was remembering how I used to do this. At one point I was bouncing back n' forth between tools.  I KNEW there was an easier way and of course once I stopped trying to actively remember, my reflexes took over. And bingo!! My fingers had not forgotten the key strokes even tho my brain had. I had the tools I  needed at the stroke of a key.  The Brain is Amazing!!!


Friday, October 21, 2011

Little M's Evaluation :-)


Her last evaluation in the spring was a bit of a disappointment  I was bummed that she did not progress as fast I expected. As I look back I can see she was in the regression/reboot phase so I'm not surprised she did not preform well.

This time I restricted her to phase one foods for about 4 days before the evaluation, because I'm paranoid. Don't want any "Bad Mood Food" AKA Maganese and Phytates to effect her evaluation. She still snagged a few finger-fulls of my birthday cake when my back was turned. I was saving her a piece for after the evaluation!!

Wednesday was her evaluation and Jan was so pleased. She said Little M is blossoming, and that she could name all the Star Wars characters LOL!

We still need to work on removing the Babinski Reflex tho (so stubborn!) and a few more tactility things that always seem the last to go.  Her dominance is all lefty now Woooo hoooo lets hope it stays that way.

We still need to work on visual detail and conversations. I love how now her profile has so few yellow diagonal lines across it!!!!! And Jan kept saying Oh this one would be gone if she gets rid of "x" (one thing not many things.) Or this one will go when this goal above it is complete. This one will go when the detail in the other column is better. It makes me very happy :-) I'm  much encouraged by this all.

I feel a bit sad for people who believe Spectrum Issues like ADHD, ADD and Autism is NOT"cure-able or fixable, and will be a life long struggle for their child."   As I see Little M growing in ability,  slowly loosing her carefulness in tactility issues, looking people in the eye, articulating her feelings and emotions. Identifying how other people are feeling, being generous, compassionate. These things were almost non existent before. Now she wants to share! has fewer issues and is slowly but surely becoming more nuro-typical.   She is much less afraid of the the world. I like that I like it a whole lot.

Her reading comprehension is mid 5th grade and her math is slightly higher. So only about 6 months "behind her peers" so to speak  which makes me happy :-)

And we saw her orthodontist and they have managed to grow her bottom jaw to where it is supposed to be. So her eating and biting ability is much improved.

It's been a week full of bad news and wrangling with the insurance company and I sure did need this good news right about now.